Rare Disease Day aims to raise awareness of the over 7,000 known rare diseases, while striving to improve access to treatment and medical representation for patients and their families.
The Delhi High Court has directed the Union Government to establish the National Fund for Rare Diseases (NFRD). What are rare diseases? What are the government policies for rare diseases? Take a look.
The University of Minnesota’s annual Rare Disease Day seminar this year, held at the end of February, explained how patients with rare diseases can utilize telehealth services nationally and ...
“Rare diseases are a significant challenge for tribal citizens ... we hope to empower our people and ensure they have access to the care and resources they need.” The day-long summit will feature a ...
While PH Awareness Month is a great opportunity to connect and educate, rare disease advocacy is columnist Jen Cueva's passion all year.