Cystic Fibrosis Foundation4d
My Journey to an Autism and ADHD Diagnosis
Growing up, I always felt a bit different. But with CF consuming so much of my life, I didn’t have the chance to explore it until Trikafta® stabilized my health. That’s when I was finally able to get ...
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How I’m Advocating for the CF Community as Miss Alabama
Becoming friends with Maddie, who has cystic fibrosis, inspired me to begin raising CF awareness and fundraising from a young age. Now I’m eager to make a larger impact with the platform I have since ...
Cystic Fibrosis Foundation2d
Cystic Fibrosis Foundation Leads the Way in Improving CF Newborn Screening Across the U.S.
Through grants, advocacy, and the development of a consensus guideline, the Cystic Fibrosis Foundation continues to advance ...
Cystic Fibrosis Foundation3d
How We Found Strength and Support in the CF Community
This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited ...
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Why We Chose Not to Have Children
I imagine most people have vivid memories of the first date they went on with their spouse. Emily took me on a hike through Will Rogers State Park in Los Angeles. It was a perfect, blue-sky, Southern ...
Cystic Fibrosis Foundation11d
Coalition Asks Congress to Extend Enhanced Advance Premium Tax Credits Permanently
Dear Speaker Johnson, Senate Majority Leader Schumer, Senate Minority Leader McConnell, House Minority Leader Jeffries: The undersigned 40 Partnership to Protect Coverage (PPC) member organizations ...
Cystic Fibrosis Foundation3d
CF Foundation Comments on Maryland’s Prescription Drug Affordability Board Upper Payment Limit Action Plan
Dear Members of the Maryland Prescription Drug Affordability Board: On behalf of the people living with cystic fibrosis in Maryland, the Cystic Fibrosis Foundation writes to provide comments on the ...
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CF Foundation Responds to Request for Information on Hospital Outpatient and Ambulatory Surgical Center Payment Systems
Dear Secretary Becerra and Administrator Brooks-LaSure: The Cystic Fibrosis Foundation thanks the Centers for Medicare and Medicaid Services (CMS) for the opportunity to respond to the Medicare and ...
Cystic Fibrosis Foundation3d
CF Foundation Supports New York’s Proposal to Extend Cost-Sharing Reduction Subsidies
Dear Secretary Yellen and Secretary Becerra: On behalf of the nearly 1,700 people living with cystic fibrosis in New York, the Cystic Fibrosis Foundation appreciates the opportunity to submit comments ...
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CF Foundation Expresses Concern To The FDA Over Alternative Funding Programs
On behalf of the Cystic Fibrosis Foundation, we write to express our concerns about third-party entities that contract with employer-sponsored health plans to import prescription drugs from outside ...