Minnesota Daily4d
Parents of children with rare diseases share their stories for Rare Disease Day
The University of Minnesota’s annual Rare Disease Day seminar this year, held at the end of February, explained how patients with rare diseases can utilize telehealth services nationally and ...
Knowledge Nugget of the day: Rare diseases
The Delhi High Court has directed the Union Government to establish the National Fund for Rare Diseases (NFRD). What are rare diseases? What are the government policies for rare diseases? Take a look.
Pulmonaryhypertensionnews.com8d
Rare disease advocacy is a year-round endeavor for me
While PH Awareness Month is a great opportunity to connect and educate, rare disease advocacy is columnist Jen Cueva's passion all year.
I faint EVERY time I laugh, cry or get hungover because of bizarre rare condition – I’m terrified it’ll KILL me one day
A WOMAN has revealed her rare condition which makes her “faint” whenever she laughs, cries or is hungover – and once almost ...
‘St. Denis Medical’ Creators Wanted to Tackle a ‘Non-Beautiful Grey’s Anatomy’
"St Denis Medical" executive producers tell TheWrap why they were excited to explore comedy in the medical community ...
Hospices 'absolutely vital' to children with rare conditions, say parents - amid fears of funding constraints
Hospice chiefs are concerned about the impact of the rise in employers' national insurance contributions, which the sector ...
NewsX9d
IndoUSrare: Catalyzing Crucial Cross-Border Collaborations and Innovation to Address Unmet Needs in Rare Diseases
In 2021, the Government of India established Centres of Excellence (CoEs) under the National Policy for Rare Diseases to ...
Daily Voice Norfolk County MA on MSN4d
Much-Needed Rainfall Headed To Region Amid Ongoing High Wildfire Risk: Here's Timing
As the risk for brush fires remains high throughout the region, a rare round of precipitation could help improve ...
health.economictimes.indiatimes8d
Patents and high price barriers: Patients with rare diseases face woes to access medicines from MNCs
Patients with rare diseases in India, like Saifullah Khalidi with spinal muscular atrophy (SMA), struggle to afford ...
extra on MSN11d
Waterford boy, 11, with ultra-rare condition spends months in hospital as he battles seizures
Suffering from countless seizures every day means Dylan can’t do what most of us take for granted. Little Dylan (Pic: ...
‘Curse stops with us’: Sad update after Brisbane dad’s rare diagnosis
A Brisbane father has died after being diagnosed with an extremely rare and incurable disease that he dubbed the family ...
The Sun10d
I faint EVERY time I laugh, cry or get hungover because of bizarre rare condition – I’m terrified it’ll KILL me one day
A WOMAN has revealed her rare condition which makes her "faint" whenever ... worsened and she can lose muscle tone up to 100 times a day. Chelsea said: "It's got to the point where it's just ...