The University of Minnesota’s annual Rare Disease Day seminar this year, held at the end of February, explained how patients with rare diseases can utilize telehealth services nationally and ...
The Delhi High Court has directed the Union Government to establish the National Fund for Rare Diseases (NFRD). What are rare diseases? What are the government policies for rare diseases? Take a look.
While PH Awareness Month is a great opportunity to connect and educate, rare disease advocacy is columnist Jen Cueva's passion all year.
A WOMAN has revealed her rare condition which makes her “faint” whenever she laughs, cries or is hungover – and once almost ...
In a Fox 32 special report, Sylvia Perez has the story of how a team of suburban surgeons solved a painful mystery for one local woman.
Thinking Christmas lights? Take advantage of the rare November sunshine and above seasonal temperatures in southern Ontario ...
"Our everyday struggle is to make every day count." Llana has two other young ... Evie Evie has been diagnosed with an extremely rare condition, which is a mutation of the gene AARS1.
As the risk for brush fires remains high throughout the region, a rare round of precipitation could help improve ...
In 2021, the Government of India established Centres of Excellence (CoEs) under the National Policy for Rare Diseases to ...
Patients with rare diseases in India, like Saifullah Khalidi with spinal muscular atrophy (SMA), struggle to afford ...
Suffering from countless seizures every day means Dylan can’t do what most of us take for granted. Little Dylan (Pic: ...
A WOMAN has revealed her rare condition which makes her "faint" whenever ... worsened and she can lose muscle tone up to 100 times a day. Chelsea said: "It's got to the point where it's just ...